Study on a Parents’ Journey through the Autism Spectrum Disorder Diagnostic and Early Intervention process.
Seeking parents that have recently, or currently gone through the ASD diagnostic process with their child aged 3 – 8 years and have participated in early intervention services for a minimum of 6 months. This study will investigate (from a parent’s perspective) the experience of the Autism Spectrum Disorder diagnostic process, access to early intervention services and interactions with other support services and professionals.
Agreed participants will be asked to complete a short web-based questionnaire (approximately 15 minutes), along with a follow-up phone interview (approximately 30- 45 minutes) which will allow us to learn more about their personal experience with their child. All participants will remain anonymous. I would like to audio record all interviews and then use the information for case study accuracy.
Jennifer Meehan, Master’s Degree Student from the School of Social Science, Education and Social Work at Queen’s University, Belfast. This study has been granted ethical approval by the School of Social Sciences, Education and Social Work Ethics Committee.
This is not an ASO research project so please contact Jennifer Meehan directly, jmeehan08@qub.ac.uk if you are interested or have questions.
Adolescents with Disabilities and Parents: Your Insights are Needed!
Seeking Adolescents with Disabilities (ages 12-25) and Their Parents, for a research study to help better understand psychosocial development (self-esteem, autonomy, identity formation, and attachment) for people who have disabilities.
You will be helping to rewrite about 40 survey questions so they can be best understood by young people with disabilities. This is anticipated to take no longer than 30 minutes.
Compensation: $10
If interested in participating or if you have questions, please contact: Myles Maxey
We are looking for young adults with intellectual and developmental disabilities (ages 18-30) with current or prior employment experience to participate in a research study. We are doing a nationwide research study about the meaning of work in people’s lives. This work will be conducted by researchers at the Texas A&M University and the University of Oregon.
The questions will cover a broad range of topics including current and prior employment experiences, work goals and challenges, personal and professional relationships, and views of work. The interviews, which will last 30-90 minutes, can happen in person, on the phone, or over Skype at a time most convenient for the participant.
We will be recording the interviews to help with data collection. This recording is for research purposes only and will only be heard by members of the research team. We will not use real names of participants or anyone else mentioned.
Participation is voluntary, and participants can skip any questions as preferred. We will do everything we can to make this a positive and comfortable experience. Participants will receive a $15 Amazon gift card for taking the time to talk with us. We will e-mail this immediately following the interview.
Transportation Survey for Adults with Developmental or Intellectual Disabilities – This survey is designed to discover the transportation needs, use, options, and barriers to use for persons with intellectual and developmental disabilities in the Portland metro area. The results are intended to inform policymakers and allow for more informed decisions about transportation improvements.
https://portlandstate.qualtrics.com/jfe/form/SV_ewAIKibw6i8rTx3
We are looking for young adults with intellectual and developmental disabilities (ages 18-30) with current or prior employment experience to participate in a research study. We are doing a nationwide research study about the meaning of work in people’s lives. This work will be conducted by researchers at the Texas A&M University and the University of Oregon.
The questions will cover a broad range of topics including current and prior employment experiences, work goals and challenges, personal and professional relationships, and views of work. The interviews, which will last 30-90 minutes, can happen in person, on the phone, or over Skype at a time most convenient for the participant.
We will be recording the interviews to help with data collection. This recording is for research purposes only and will only be heard by members of the research team. We will not use real names of participants or anyone else mentioned.
Participation is voluntary, and participants can skip any questions as preferred. We will do everything we can to make this a positive and comfortable experience. Participants will receive a $15 Amazon gift card for taking the time to talk with us. We will e-mail this immediately following the interview.
The principal investigator is Dr. Carly Gilson, an assistant professor of special education at Texas A&M University. If you are interested or have any questions, please send an email to Dr. Gilson at carly.gilson@tamu.edu.
New Employment First podcasts air the first and third Tuesday of each month. You can subscribe or stream at: https://www.blubrry.com/
ADULT PARTICIPANTS NEEDED FOR AUTISM STUDY!
(Must be 18 years of age or older)
Doctoral candidate is seeking adult college students who meet the following criteria for participation in a dissertation study:
- • Possess a diagnosis of Autism Spectrum Disorder (ASD).
- • Be in physical attendance for at least one semester at a public college or university.
- • Not be withdrawn from college or university for more than two semesters.
The purpose of the study is to give ASD students the opportunity to share their stories of social experiences, while attending a college or university. The study will raise awareness within the education community of the social lives of ASD students at higher education institutions. Participation in this study includes an initial one-hour video conference interview, a thirty minute follow up interview, and three days of journal writing.
If you are interested in learning more about participation in the study, contact Principal Investigator Deborah Bogle, M.S. at 971-409-9632 or dbogle@mail2.cu-portland.edu. This study received IRB and Concordia University-Portland approval.
Participate in a research project titled “Project POSSIBLE (Parents and practitioners coaching on social-communication skills for
individuals with intellectual or developmental disabilities and autism).”
The purpose of this study is to investigate the effectiveness of communication interventions for individuals with intellectual or developmental disabilities, autism spectrum disorder, or related
disability to improve their communication, social, and/or behavior skills. This study is intended for individuals of age 12 and up who exhibit core features of IDD or ASD including communication, social skills, or behavior deficits. The study will be conducted for approximately 60 minutes 1 day a week over 3 to 5 months. If you are interested in possibly participating in this research project, feel free to contact me at swattanawongwan@tamu.edu.
Doctoral students at the University of Oklahoma are seeking parent participants for a new study. The purpose of this study is to understand the perceptions of parents on IEP dynamics and meeting experiences. If you would not mind spreading word of our survey, we would greatly appreciate it – we are trying to gauge perspective of parents, nation-wide. This survey is designed for parents of a child with a disability AND an IEP. Please let me know if you have any questions about this study.
This a two-part study:
- Online survey about meeting experiences and parent-teacher dynamics (10-15 minutes). Link to Survey: https://ousurvey.qualtrics.com/jfe/form/SV_0VXzLiPQIbcTlAh
- Optional: phone/video interview at time of your convenience. Researcher will ask questions about your experiences in IEP meetings (30min-1hour).
The ARC Lab at Clemson University is conducting a study about perceived object use. We are looking for participants to take our survey. The survey only takes 15-20 minutes to complete. By completing the survey and providing your contact information, you will be guaranteed a gift card worth $15- your choice of VISA or Amazon. You will also be entered into a drawing to win a pair of Bose Quiet Comfort 25 Noise Cancelling Headphones (Retail Value: $299.99). Each valid response you provide will be counted as an additional entry into the drawing. If you have any questions about the study, please contact Dr. Jennifer Bisson at jbisson@clemson.edu.
We thank you for your participation.
Please visit the link below to begin the survey:
: https://clemson.ca1.qualtrics.com/jfe/form/SV_6QmyT6tQNC9hE6F
We here at Oregon Training and Consultation (OTAC) a program of The Arc Oregon are partnering with The University Center for Excellence in Developmental Disabilities (UCEDD) at Oregon Health and Science University (OHSU) and Among Friends, LLC, to survey professionals and family members who support people with intellectual and developmental disabilities about their experience providing sexual health information. We want to know if support providers are talking about sexual health, what topics they are comfortable discussing, what some of the barriers are to providing education and support around sexual health.
Please share about your experience by completing the following survey and sending the survey link out to others who would be interested in sharing: https://ohsu.ca1.qualtrics.com/jfe/form/SV_cVaYuAFfWjjRSjr
This short survey should take 5 to 7 minutes to complete. We will be using the information to inform an intensive sexual health training program launching in early spring!
Thank you for your participation! If you have any questions about the survey, please email Lindsay at sauv@ohsu.edu.
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NEEDED: Parents/caregivers of young children with developmental disabilities!
Complete a survey to help improve our understanding of parental influence on physical activity
and motor skills of young children with developmental disabilities.
Survey link: http://oregonstate.qualtrics.com/jfe/form/SV_1LYoEA85kF8gInj
To participate in this study, you should: Be a parent/caregiver of a young child (5 years and 7 years 11 months) with a developmental disability. An example of a developmental disability includes, but is not limited to autism spectrum
disorders, intellectual disabilities, cerebral palsy, visual impairments, attention-deficit hyperactivity disorder, hearing loss and developmental delay.
Participation in this study involves completing an online survey, which takes approximately 13 – 18 minutes.
To find out more information, contact an assistant investigator, Ku Byungmo at
kub@oregonstate.edu
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If you have a child (any age) that has been diagnosed with an Autism Spectrum Disorder (ASD) in the past 3 years, and you were present when the diagnosis was given, you are invited to participate in an online research survey!
The purpose of this study is to better understand how parents receive a diagnosis of ASD and how their clinicians delivered the diagnosis. The ultimate goal is to formulate guidelines for practitioners on ways they can effectively, sensitively, and helpfully deliver the diagnosis. The survey will take about 15-20 minutes to complete and you may choose to enter a drawing for a $75 Amazon.com gift card upon completion of the survey. You will not be asked to include any identifying information, and this survey will in no way affect your standing with any programs or providers you are involved with.
Please use this link to access the survey:
http://bit.ly/diagnosing_autism
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Currently looking for participants for a study which is examining the roles that parents/primary caregivers play in helping their adult child with an intellectual disability have romantic relationship experiences (such as dating). We are looking for a nation-wide sample of parents who have an adult child with a mild/moderate intellectual disability, and your organization was mentioned as a good fit for the participants we are trying to find. Participants will be asked to complete an anonymous online survey that will take approximately 20 minutes for the chance to get a $50 gift card. They will also have the option to participate in a phone/online interview and will be given $30 for the interview as well. Here is a link to the survey.
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The Council on Medical Student Education in Pediatrics (COMSEP) established a General Pediatric Clerkship Curriculum in 1995, with modifications in 2002 and 2005, with intent that this curriculum is the foundation on which medical student education programs in pediatrics are built. This curriculum is once again undergoing revisions, and we are reaching out to all stakeholders for input into the shape this curriculum will take.
At the core of the pediatrics curriculum are “The skills, attitudes, and knowledge that every doctor must know and do to safely and compassionately care for children.”
This is where your input, a parent who has interacted with pediatricians-in-training, is critical: we want to know what you feel are the crucial components a trainee needs to know and understand to care for children. We are intentionally seeking input from non-pediatricians, including families who have interacted with medical trainees. This survey will take you approximately 5 minutes to complete, and we are very grateful for your assistance.
Please use link below to complete the survey.
COMSEP – Family input on Curriculum
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ODDS is gathering input from adults accessing DD services and parents of children and adults accessing DD services. The goal is to use this input to inform the the work of the department to make the process more meaningful for people with disabilities and their families. Please take their survey at: https://www.surveymonkey.com/r/2CC6FR2
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PAUSE: A new study examining health and well-being among mothers who have a child with autism spectrum disorder.
To participate, you will need to:
• Be at least 18 years old
• Be able to read and understand English
• Have a child with ASD—of any age—who lives with you
• Have an Apple or Android smart phone and be willing to download a study app
If you join, you will be asked to do:
• A 10-day mindfulness program using an app on your phone
• A set of surveys on health and well-being before and after the mindfulness program
• A 30-minute phone interview at a time that is convenient for you
If you decide to join the study, your participation will be strictly confidential. We know your time is valuable! If you join the study, you will receive $100 in gift cards to thank you for your participation.
Interested? Go to: https://www.kpchr.org/pause
Questions? Email the PAUSE study team at CHR_PAUSE@kpchr.org
This research project has been approved by the Kaiser Permanente Northwest Center for Health Research Institutional Review Board.
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