Research and Surveys on Autism
Research & Surveys - Participants Needed:
ASO receives many requests for participation in surveys and other research being conducted on various aspects of Autism Spectrum Disorders. Although we can't review all of these, we do post them for individuals to decide if they would like to participate. Posting of these research announcements does not constitute any endorsement by ASO. If you have any questions about the research being conducted, please contact the specific researcher for more information.
The purpose of the CAMP study is to develop a diagnostic tool for autism spectrum disorder that could be used in very young children. The earlier a child can be diagnosed, the faster they can receive helpful intervention. Currently, we do not have an accurate, biological, diagnostic test for autism. This study will compare two methods for diagnosing autism: 1) a laboratory test performed on a blood sample and 2) a standard behavioral test by a trained psychologist. Click here for more information.
Attention parents and caregivers of children with autism aged 4 to 11 years! Share your opinions about family quality of life with researchers at the University of Windsor by completing an online survey. It takes about half an hour to complete and you will be offered a $5 (CDN) e-gift card as an incentive. This study has received clearance from the University of Windsor’s Research Ethics Board. If you are interested in participating, e-mail Jenna Jones at firstname.lastname@example.org for the study link. Please share with anyone else who might be interested.
You are invited to help with a thesis project focused on analyzing and understanding parental perspectives regarding the diagnostic journey they undergo when they have a child diagnosed with Autism Spectrum Disorder. The goal of this study is to identify any deficits in care the families of children with Autism experience and explore where, in these deficits; a genetic counselor can work to improve the experiences of the families. Click on the following link to participate in our survey: bbmc.ouhsc.edu/redcap/surveys/?s=8EJCHM8YCH
You are invited to evaluate the effectiveness of treatments for autism, including medications, nutritional supplements, diets, therapies, and education. Our goal is to learn which treatments are most effective for different symptoms (language, anxiety, sleep, GI, etc.). Survey results will be posted on our website for families and clinicians, and published in a scientific journal. Your participation is voluntary. The survey will take 15-45 minutes, depending on the number of treatments you wish to rate. autism.asu.edu/
Previous studies have shown that individuals who engage in physical activity experience many positive benefits such as maintaining a healthy weight and improved mental health. However, less than 48% of the population is meeting the national physical activity guidelines, and some research has found this number to be even lower among individuals with Autism Spectrum Disorders (ASD). We are conducting a research study to understand the motivational process for young adults with ASD to engage in physical activity. We are asking for your help to recruit young adults with ASD between the ages of 18-35. If you have any questions regarding the survey, please contact Jessica Hamm at Jessica.Hamm@oregonstate.edu
3C Institute is looking for individuals with high functioning autism spectrum disorders (HF-ASD), their parents, and educators to give us feedback on the current resources you are using to prepare for the Post Secondary Education transition and feedback on our web-based program. For more information, please contact Andy Jin at 919-677-0102 ext. 583 or email@example.com.
Are you the parent of an 8-12 year old child with Autism Spectrum Disorder without an intellectual disability? Does your child report experiencing problems with flexibility, planning, and/or organization? If so, you may be eligible to participate in a research study to provide feedback on a software program for parents that provides advanced training on how to apply an evidence-based curriculum, Unstuck and On-Target, at home. To learn more or to determine if you are eligible to participate, click unstuckontarget.com/study
Posted Dec 2015: Sensory Nerve Research Study for Adults with Autism
Very little is known about the sensory nerves of individuals with autism. While it is known that they have problems with touch on many parts of the body and in the mouth, sensory nerve function has not been fully evaluated. In this study, we seek to learn more about the sensory nerves in autism. A very small biopsy from the leg will be taken from adults with moderate or severe autism over the age of 20. We will compare the results with those of individuals without autism. A very small surface sample of skin -- less than 1/8 inch in size -- from the leg. It is so small and surface that a stitch is not necessary. It will leave a small circular scar that is less than 1/8 of an inch.
• Participants should be 20 years of age or older
• Participants should have a confirmed diagnosis of autism and be on the moderate to severe end of the spectrum
• Participants should not have diabetes or any other neurological or skin condition
How to Enroll
1. Send an email to firstname.lastname@example.org expressing your interest in the study.
2. Fill out the preliminary information forms at the following link:
3. Scan or fax a copy of the autism evaluation and diagnosis to email@example.com or fax 503.715.4654.
Dr. Silva will review the information to determine whether eligibility criteria is met. She will inform you within a few days whether he/she has been accepted into the study. If accepted into the study, an informed consent form will need to be completed.(http://qsti.org/biopsyconsent.pdf).
Compensation: Participants will be compensated $500 after the completion of the biopsy.
Questions? If you have questions, you may contact the Principal Investigator of the study, Dr. Louisa Silva, at firstname.lastname@example.org or 503.474.0218.
Funded by the Curry Stone Foundation and conducted by Western Oregon University's (WOU's) Teaching Research Institute. This study has been approved by WOU's Institutional Review Board.
Are you the parent of a child with a high functioning autism spectrum disorder (HF-ASD), Asperger’s syndrome, or Pervasive Developmental Disorder-NOS who is a high school student preparing to transition to a post-secondary education setting such as a university or a community college within a few years? Would you like to participate in the development of a computer-based program designed to help individuals with HF-ASD transition to college with improved success? With funding from the U.S. Department of Education, 3C Institute is looking for individuals with high functioning autism spectrum disorders (HF-ASD), their parents, and educators to give us feedback on the current resources you are using to prepare for the PSE transition and feedback on our web-based program. If your child is eligible, and you and your child are chosen to participate in the study, you will be asked to:
- · Contact your child’s teacher or school provider about their participation in the study
- · Complete online consent materials
- · Complete questionnaires two times (now and again in about 8 weeks) regarding your child’s motivation to pursue postsecondary education and his/her PSE-related skills. Both your child and the school provider will complete these questionnaires.
- · Answer questions regarding the tools, resources and practices that you use to help prepare your child for postsecondary education
Participants (parents, students, and teachers) will receive between $70 and $150 for the completion of ALL study materials. Participants will also receive access to a web-based program, PREP, aimed at helping students with ASD identify and develop skills to support their success in college.
If you are interested in participating in or learning more about this study, please click the link below to complete a brief eligibility screening form.
We will contact you to let you know if you qualify and provide the next steps for participation.
If you have any questions about the research study, please contact Rachel Hall at 919-677-0102 ext. 514 or email@example.com.
We are doing a study to see if diet is linked with some general health symptoms in adults on the autism spectrum. You will attend one 2-hour visit and one 45-minute visit. You will also be asked to take pictures of what you eat and write the amounts of what you eat and drink at home. You may qualify if you are 18-65 years old, have been diagnosed with, or think you have an autism spectrum disorder, can understand English, have a digital camera or smart phone, and are not pregnant or breastfeeding. You will receive $50 and can give a blood sample to receive an additional $20 as well as find out your vitamin D, fatty acid and folate levels. To see if you qualify, please call Sarah at 503-552-1803
Pregnancy, Disability & Women's Decisions Are you a woman on the autism spectrum? Are you a woman with a developmental disability that affects learning or understanding? If you have been pregnant, had a baby, or chosen not to, we want to hear your story. Portland State University (PSU) and Oregon Health & Sciences University (OHSU) researchers, and women with developmental disabilites are partnering on a new research study. You may be able to be in the studay if you are at least 18 years old and live in Multnomah, Washington, Marion, Clackamas or Clark County. If you take part in the study, a PSU researcher will interview you in private. Your interview will last about 90 minutes. Interviews can be done in person or over email, insant messenger or telephone. If you are in the study, you will be paid $40. For more information, contact Mary Oschwald at firstname.lastname@example.org or Khaki Marino at email@example.com
Benjamin Karren, a Ph.D. student in School Psychology at Texas A&M University, currently is working on research project that seeks to examine the behaviors and social skills of siblings of children with autism. The study aims to compare siblings of children with autism to siblings of typically developing children that are between the ages of 6-11. In order to be eligible a parent must have two children with one child between the ages of 6-11. The project will further investigate possible risk and resilience factors related to behaviors and social skills, which include family demographics and parental stress levels. As part of this study parents will be asked to complete a set of questionnaires and rating scales that should take approximately one hour to complete. No travel is needed and all materials will be shipped to participants. Participants will have the opportunity to enter a drawing for 1 of 6 $50 gift cards. If you wish to participate or have further questions contact Benjamin Karren at 802.683.1366 or by e-mail at firstname.lastname@example.org.
Children with autism spectrum disorder often experience unique challenges during adolescence which affect how they think about themselves and interact with their peers. Researchers at the University of Oregon are conducting a study investigating social and emotional processing in autism during adolescence. They are looking for 11-16 year old males with high functioning autism to participate. The study will include 1-4 appointments, and participants will complete paper and pencil tasks, computer games, and a brain imaging (MRI; magnetic resonance imaging) scan. (MRI is safe and non-invasive. It does not use radiation or contrasts/dyes.) Participants will be compensated $10-25 per hour. For more information, email the Developmental Social Neuroscience Lab at email@example.com.
The Virginia Tech Autism Clinic in Blacksburg, VA is recruiting siblings of children with autism to participate in a long-distance research study.
Who: Children in grades 1-9 with a sibling with an Autism Spectrum Disorder (Autism, Asperger’s, or PDD-NOS). Children must currently live in the same home, and sibling without ASD must attend a public or private school. Participating parent must be primary caregiver, but other parent is welcome to participate, too!
What: Phase I: Complete surveys by mail (45-60 minutes). Phase II: Participate in a one-on-one interview by phone or Skype (20-30 minutes). Compensation provided for each phase.
Contact: Tyler Hassenfeldt - firstname.lastname@example.org or (412) 600-8304
This study aims to better understand the experience of siblings and parents of individuals on the Autism Spectrum. De-identified results will be used in Ms. Hassenfeldt’s dissertation and may be published. Focus groups/interviews will be audio recorded for transcription purposes.
Looking for fathers (including biological, step-, adoptive, foster-, grand-, etc.) that are raising a son aged 4-11 with Autism Spectrum Disorder.. If interested, contact the number on the flyer. You will be given a link to an online survey asking you about your parenting experiences and play behaviors. The survey will take 20-35 minutes. To thank you for completing the survey, you will be offered a $5 electronic gift card for Amazon.
Are you a woman on the autism spectrum? Are you a woman with a developmental disability that affects learning or understanding? If you have been pregnant, had a baby, or chosen not to, we want to hear your story. Portland State University (PSU) and Oregon Health & Science University (OHSU) researchers, and women with developmental disabilities are partnering on a new research study.
You may be able to be in the study if you are at least 18 years old and you live in Multnomah, Washington, Marion, Clackamas, or Clark County If you take part in the study, a PSU researcher will interview you in private. Your interview will last about 90 minutes. Interviews can be done in-person or over email, instant messenger, or telephone. If you are in the study, you will be paid $40.The payment will be in cash if you meet in person, and with a Visa gift card if you meet over the phone, or in email or instant messenger. Please contact Mary Oschwald, email@example.com, 503.725.9602 or Khaki Marino, firstname.lastname@example.org 503.725.9656.
We're a group of students at Cornell University in Ithaca, New York looking for some feedback on a product regarding diet. Please take our (very) short survey linked below, as your feedback is extremely valuable to us!
Project EF is looking for babies ages 4 to 8 months. This study will look at how your baby is developing over time. You will be asked to give your input when your baby is 6-8 months, 18 months and 3 years of age. At age 3, we will ask you to tell us about your child’s learning such as finding a hidden toy and engaging in social play. Click here for more information.
My name is Erin Okumoto, a doctoral candidate in Counseling Psychology at Washington State University. Inspired by my interest and compassion for caregivers of and persons with special needs, I am currently conducting my dissertation on the experiences of parents of children with disabilities, considering parents' unique stressors, ways of coping, and how those factors affect their well-being. Participation in this study is completely voluntary and confidential and involves taking an online survey(no more than 20 min). Upon completion of the survey, participants may choose to enter a raffle for a gift certificate to Amazon.
-You are at least 18 years-old
-You are the parent/guardian of a child (0-21 years old) who receives special needs services and/or has a disability.
The link to the survey is educationwsu.co1.qualtrics.com/SE/?SID=SV_9vsRufzk0YlAscZ
Global NAET Autism Study - NAR Foundation is planning to conduct a large global study using 100 trained NAET practitioners on a group of 1296 autistic children (ages 2 to 10) to determine the effectiveness of NAET in Autism Spectrum Disorder. For more details, please click here. If you are in the Portland area and are interested in participating in this study, please e-mail Kelly O’Connor at email@example.com or call Kelly at 503-407-1861.
A student of Rhode Island College is currently working on a research study, under the guidance of Dr. Emily Cook, and is trying to recruit parents of children ages 3-17 diagnosed with Autism Spectrum Disorder (ASD) to be a part of her project. The project is interested in examining how parents influence their child’s overall well being. Should parents chose to participate they will be asked to complete a 30 minute online survey that assesses parenting styles, severity of child’s symptoms, and quality of life of the child (e.g., how the child is adjusting). Once completed the participant will be asked if they would be interested in entering for a chance to win up to $100 in the form of an Amazon eGiftcard. The survey is available via the link below. https://www.surveymonkey.com/r/ASDQOL
Looking for People Caring for family members with Autism / Alzheimer's Dementia We are conducting a social research study to better understand the experiences of those who care for a family member /loved one with a form of pervasive developmental disorder (e.g. autism, Asperger syndrome, Rett syndrome, childhood disintegrative disorder, etc.) or with progressive forms of dementia. We are looking to gain a more complete understanding of daily routines, experiences, and other caregiving responsibilities. The information gathered will be used to develop support services that wil hopefully better assist caregivers. Partificipation is easy and involves keeping a video diary and one short in-home visit. To find out if you qualify to participate, please send an email with your name, phone number and best time to reach you to firstname.lastname@example.org
Survey on Successfully Toilet Training Children with Disabilities The purpose of this study is to discover how caregivers of children with special needs toilet train their children. This study is aimed at caregivers with the understanding that people who have actually had the experience are the best resource for gaining truly informative and useful information about that experience. This study is completely voluntary and the survey is anonymous. You do not have to complete the survey, although your participation would be greatly appreciated. If you have questions about the survey, please contact EricaElledge@Creighton.edu. Survey link: https://www.blueq-surveys.creighton.edu/se.ashx?s=46BEEE7F6C4758E5
Parents and Caregivers of children with autism, you are invited to participate in a valuable study. This study can help voice your concerns about how you feel your child is being educated. Please go to the link below and take this short survey. Your cooperation is greatly appreciated.
Survey Monkey survey link: https://www.surveymonkey.com/r/RQCFPFL
Brain Development Study for Children with Autism
Researchers at OHSU are looking for families of children with Autism (Autism, Asperger’s, High-Functioning Autism, and PDD-NOS) between the ages of 7 and 15 to participate in a study to look at differences among children with and without Autism. This study involves up to four visits to OHSU where you will complete an interview and set of questionnaires. Your child will complete some thinking tasks as well as an MRI scan (Magnetic Resonance Imaging Scan) of his or her brain. Like x-rays, the MRI takes pictures, but does not use radiation. There are no medications or injections involved with this study. Your child will read a social story about the study and do a brief practice scan in a “mock scanner” before doing the real MRI. You and your child will be compensated for your participation in this study. The parent participant will receive a total of $110 and the child participant will receive a total of $80 and a brain picture upon completion of the study.
Your participation is completely voluntary but would greatly help us better understand how Autism and ADHD are alike and how they are different so that we can continue to improve our interventions for all children.
Please e-mail us for further information about this opportunity to participate in autism research. email@example.com
Are YOU an Adult with Aspergers Autism PDD-NOS?
Do you ever wish research on the autism spectrum reflected YOUR attitudes, experiences, and opinions? You are invited to participate in an online research study about the experiences and attitudes of individuals on the autism spectrum. Little is known about how adults on the autism spectrum think about themselves or their experiences. Little is also known about how individuals on the autism spectrum view the diagnosis.Your participation in this study may help advance understanding of the perceptions and experiences of adults on the autism spectrum.
To participate in this study, you need to:
- Be age 18 or older
- Have a diagnosis or identify with a diagnosis of Asperger’s Syndrome, Autism, or PDD-NOS
- Be able to complete an online survey
Participation in this study includes a chance to win a $100 Visa Gift Card.
To participate in this study, please use the following link:
University of Wisconsin- Madison IRB Approved Study ID: 2014-0075-CP002
The Oregon Research Institute is looking for parents of 3-7 year old's with challenging behaviorsto take part in a research study. For more information, please click on the link http://bit.ly/1mz21BH
Help a High School Student with a survey based research project on autism and parenting styles in the hopes of making a difference in the lives of families that have a child with an Autism Spectrum Disorder. https://www.surveymonkey.com/s/parenting_style_in_children_with_ASD
Women on Spectrum's Sexuality Study
A Doctoral Candidate is looking for women, and people with more fluid gender identities (for example, transgender, agender, genderqueer), between 18 and 30 years old, on the autism spectrum to complete a 20-minute online survey. The survey and more information about the study are available here: www.umbwomensstudy.com. Participation is on a volunteer basis and completely confidential. Participants have the option of receiving a summary of the study findings once it is finished. This study has been approved by UMass Boston's IRB (protocol #2014095).
Online study for students with HFA transitioning to college
Do you have a high functioning autism spectrum disorder?
Have you attended or are you currently attending a postsecondary setting (for example, a university, a community college)?
Would you like to make $100 in just a few hours?
With funding from Autism Speaks, 3C Institute is looking for individuals with high functioning autism spectrum disorders to review and tell us what you think about our program that is designed to help students cope with the personal, social, and academic challenges of college life.
- If eligible, you may be chosen to participate in the study where you will be asked to review the SCoRE-Propel (Student Curriculum on Resilience Education-Propel) curriculum during a four-week study.
- Each participant with a high functioning autism spectrum disorder may receive up to $100 in gift cards at the end of the study period.
We will also ask your permission to contact one of your parents to ask your parent, to review the program and give us feedback (if one of your parents decides to participate in the study, your parent will not have access to information that you provide as part of the study). In addition, you are not required to allow us to contact your parent to participate. You can participate whether or not you give us contact information, and if we contact your parent, whether or not your parent agrees. If your parent does agree, your parent will also receive a separate gift in appreciation.
If you are interested in possibly participating in this study, please click here www.scoreforcollege.org/scorepropel/participate to complete a brief eligibility screening form. We will then contact you to let you know if you qualify and to provide the next steps for participation.
If you have any questions about the research study, please contact Kate Melillo at 919-677-0102 ext. 579 or email her at SCoREPropel@3cisd.com
Are YOU an Adult With Aspergers Autism PDD-NOS? Do you ever wish research on the autism spectrum reflected YOUR attitudes, experiences, and opinions?
You are invited to participate in an online research study about the experiences and attitudes of individuals on the autism spectrum. Little is known about how adults on the autism spectrum think about themselves or their experiences. Little is also known about how individuals on the autism spectrum view the diagnosis. Your participation in this study may help advance understanding of the perceptions and experiences of adults on the autism spectrum.
To participate in this study, you need to:
* Be age 18 or older
* Have a diagnosis or identify with a diagnosis of Asperger’s Syndrome, Autism, or PDD-NOS
* Be able to complete an online survey
Participation in this study includes a chance to win a $100 Visa Gift Card.
To participate in this study, please use the following link:
The Oregon Research Institute is looking for parents of children with challenging behaviors to participate in a research study called Success for Children and Families Project
In order to learn more about the study or to determine if you are eligible to participate in this study, please visit this link:
Research Institute is recruiting adults (ages 20 and older) with autism to participate in a study. It is a biopsy study to research the sensory nerves in individuals with autism. Participants that complete the study will receive $500. For more information, visit http://qsti.org/qigong-massage-research/open-studies or contact Kris at503.474.0218, firstname.lastname@example.org.
Previous studies have shown that individuals who engage in physical activity experience many positive benefits such as maintaining a healthy weight and improved mental health. However, less than 48% of the population is meeting the national physical activity guidelines, and some research has found this number to be even lower among individuals with Autism Spectrum Disorders (ASD). We are conducting a research study to understand the motivational process for young adults with ASD to engage in physical activity.
We are asking for your help to recruit young adults with ASD between the ages of 18-35. We are looking for participants who you feel can complete a questionnaire independently or with little support. Please respond to this email and indicate if you are able to post a questionnaire about motivation, physical activity, and perceived overall health within the resources section of your webpage.
We appreciate your time and thank you for your assistance. If you have any questions regarding the survey, please contact Jessica Hamm atJessica.Hamm@oregonstate.edu