Autism Society of Oregon Autism Society of Oregon on Facebook

Oregon Chapter

Autism Support

Autism Society Support Groups in Oregon

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Oregon has one of the highest rates of autism in the U.S. If you haven't already, you will meet someone with autism. People with autism want to lead fulfilling lives and make a meaningful contribution to society. Together, we can make that happen.

For Information and Resources Call
888 - Autism - 1
888 - 288 - 4761

Research on Autism

On-Going Research - Participants Needed

Parent-delivered Massage Program Research Study for Children with Autism Ages 6 to 11 -  Parents must be willing to:
• Participate in 20 home visit treatment sessions with trained staff during the first five months followed by 4 monthly sessions • Give the fifteen-minute massage daily • Not start new treatments for autism during the study
 Children must: • Have a medical and/or educational diagnosis of autism • Be between ages 6 to 11 • Not take psychoactive medication or pharmaceutical chelation therapy • Have no additional chronic disability (e.g., cerebral palsy or uncontrolled
seizures) • Not receive more than 15 hours per week of intensive behavioral treatment for autism (e.g. ABA therapy)
Contact Us: study@qsti.org, 503.474.0218, www.qsti.org

Do you have a child with Autism Spectrum Disorder (ASD)? Do you also have a niece, nephew or other extended family member with ASD? We are recruiting families with at least one child diagnosed with ASD and one or more extended family members diagnosed with ASD (age 3 and up) to participate in our study. Participants must be biologically related. The study involves a phone call to determine if the study is a good match for your family; completion of questionnaires and a phone interview; one 2-hour visit with UW staff which will include cognitive and language testing; a blood draw for DNA analysis. For more information, please call our research coordinator at 206-616-3410 or email us at ankenk@uw.edu

Vulnerability of individuals with autism spectrum disorder to naïve involvement in criminal activity
Researchers at Flinders University invite adults aged 18 years or older with an autism spectrum disorder to participate in an online study. This research is being conducted by Rebecca Flower (Rebecca.Flower@flinders.edu.au) under the supervision of Associate Professor Robyn Young (Robyn.Young@flinders.edu.au) and Professor Neil Brewer (Neil.Brewer@flinders.edu.au).The aim of this project is to understand whether features that may be present in individuals diagnosed with autism spectrum disorder influence their understanding of social situations and appropriate behaviour. The project consists of two sessions. Each session is expected to take approximately 1 hour (you may take up to 4 hours to allow for breaks). The second session will occur weeks or possibly months later.This session will involve questions about demographic information (including age, gender, diagnosis, and any experiences you have had with the criminal justice system) and a set of statements about your preferences and skills. Following this, you will be asked about your interests, and then to watch some short scenarios and answer 1-2 questions after each.Participants who complete the study requirements will receive a $10 (AUD) Amazon voucher after each session.

To participate, please click the following link: bit.ly/1iLztCu

ASD Children and Their Siblings

The SocialsibS project, funded by a Treatment grant from Autism Speaks, will investigate the effects of a 10-week social communication intervention implemented within the PSU Speech & Language clinic. We are currently recruiting families for participation in the study. Families will receive 10 weeks of intervention individualized to their child's specific social communication goals free of charge. Recruiting children with ASD ages 4-7 and siblings with typical development ages 5-10. For more information, go to: http://asdchildlab.research.pdx.edu/

Important Survey on Disability Employment

The survey takes about 10 minutes, and everyone who completes it has the option to be entered for a chance to win $500. 

Take the survey.The survey questions are well designed and have the power to shape debate about disability policy. Power and control of policies can be ours for the taking, but we need a very large sample size and strong participation from the grassroots disability community to ensure that the results are valid. The results of this poll will be shared with the White House, all 50 Governors, top media, disability groups, and more! The results of each individual will be confidential, but the overall results will be made public. For further information, please contact Jennifer Laszlo Mizrahi at jlm@laszlostrategies.com or 202-365-0787.

Autism Diagnosis Project (ADP)
Click here for survey.
This project is being conducted by researchers at the Portland State University Autism Training & Research Center and special education graduate students who are completing their master’s project requirements. The study will examine the experiences of parents of children with autism spectrum disorders in obtaining a diagnosis for their children from physicians. The information collected will be used to better inform doctors and parents, so that children with autism will be diagnosed at an earlier age and be able to receive educational services as soon as possible. In addition, study results will be shared with parents and other researchers and practitioners in the field, including specialists at the Oregon Health Sciences University Autism Clinic. The results will also guide the development of resource materials for families, pediatricians, and practitioners. Study results and resource materials will be posted on the Autism Training & Research Center website. At a later date the public will be able to review the study results and download any posted resource materials.
Information about your Online Survey Responses
Your participation in this study is voluntary. Your responses will be automatically and
anonymously be recorded in a Google spreadsheet. There are no names or identifying
information collected on the surveys. Researchers will only see the time and date of
completion and answers to each question and have no way of knowing who completed each survey. Your survey responses are confidential. Your identity or child’s identify (if you are a parent) will remain anonymous.
Interested in Completing a Survey? Complete the survey for parents!
Questions? Please contact Dr. Helen Young at 503-725-8009 or email her at autism@pdx.edu
If you have any issues or concerns about your participation in this study or your rights as a research subject, please contact the Portland State University, Human Subjects Research Review Committee, Office of Research and Strategic Partnerships, Market Center Bldg., 6th Floor, 1600 SW 4th Avenue, Portland, OR (503) 725-4288 or 1-877-480-4400, hsrrc@pdx.edu.

The physical fitness of school-aged children with autism.
Children with and without autism between the ages of 9-18 years old and their parent(s)/caregiver(s) are invited to participate in a study aimed to understand the physical fitness of school-aged children with autism. For more information, please contact Megan macDonald, PhD (principal investigator) at megan.macdonald@oregonstate.edu or 541-737-6928


Online Study for Parents of Children between the Ages of 5-12 Diagnosed with ASD.
Parents of children between the ages of 5-12 diagnosed with ASD are needed to participate in an online study at Queen’s University. The study will require you to complete questionnaires about your child’s behaviours and emotional responses. The study is being conducted by Dr. Elizabeth Kelley's lab at Queen's University. The study is completely confidential and non-invasive. To participate, go to tinyurl.com/QueensASDstudy and enter the password: asdstudy.


Effects of Parent-Delivered Massage in Young Children with Autism in the Willamette Valley and Columbia Gorge areas
Western Oregon University's Teaching Research Institute has been awarded a grant by the federal Maternal and Child Health Bureau to conduct a three-year study on the beneficial effects of parent-delivered massage in young children with autism. Teaching Research Institute at Western Oregon University has been teaching parents a daily massage program that has been shown in early studies to be effective in helping children become more comfortable with touch. Children become calmer, are better able to learn, and exhibit better behavior overall.

Starting this fall, 50 children under age six will have the opportunity to participate in the study. In the fall of 2014, 35 children ages 6 through 11 will be enrolled in the study. Families enrolled in the study will receive free training, treatment, and assessments. 
Participants will be recruited from the Portland, Columbia Gorge, Salem, Albany/Corvallis, and Eugene areas, and accepted on a first-come, first-served basis. Those interested in learning more about the study can visit www.qsti.org or call 503.474.0218.
 

Improving Communication with Siblings:
The SocialsibS project, funded by a Treatment grant from Autism Speaks, will investigate the effects of a 10-week social communication intervention implemented within the PSU Speech & Language clinic.  The intervention will use video modeling with the child with ASD and teach the sibling strategies to improve communication.  These two methods of video modeling and sibling mediation, have been found to be effective in improving social communication for children with ASD. http://www.autismspeaks.org/science/grants/hybrid-social-communication-intervention-children-asd-sibling-mediation-and-video-mod

Families are currently being recruited for participation in the study. Families will receive 10 weeks of intervention individualized to their child's specific social communication goals. Recruiting children with ASD ages 4-7 and siblings with typical development ages 5-10.

Compensation:   
 * 10 weeks of social communication intervention services, 
 * Free PSU parking during intervention services

 * Two $20 Fred Meyer gift cards (one upon enrollment and one at discharge from the study)

Contact: Amy Donaldson
(503) 725-3224 • adonald@pdx.edu
724 SW Harrison, Room 85
Portland, Oregon 97201

 
Walden University Adult Caregiver Survey:
Are you a caregiver of an individual with an Autism Spectrum Disorder who recently graduated (or aged out) of high school this past year? If so, please click on the link below and take a brief questionnaire. It should take you less than five minutes to complete. If you meet the criteria for participation, a behavior rating scale and a self-addressed stamped envelope for its return will be mailed to the address you provide, which should take you approximately 45 minutes to complete. This is a research study by a doctoral student intended to provide empirical evidence to lawmakers and school district personnel about the importance of implementing and funding community-based instruction for individuals on the spectrum.
http://www.surveymonkey.com/s/CBI_ASD


NCNM (Portland) - Autism Micronutrient Study

A study about nutrient levels in adults with autism spectrum disorders. Participants will be asked to come in for one visit at the Helfgott Research Institute at the National College of Natural Medicine.  At the visit participants will be asked to fill out a health intake form, give a blood sample, and complete an interview. The entire visit should take about two and half hours. Participants who complete the study will receive the results of their nutrient analysis and a $20 gift card to Fred Meyer. To be eligible participants must:
-       Be between 19 and 50 years old
-       Be in good health
-       Have been diagnosed with an autism spectrum disorder
-       Not be using a vitamin, mineral, or fish oil supplement within the last 2 months.
For more information call 503-552-1911IRB #112712
Or see: http://www.ncnm.edu/helfgott-research/study-participation-opportunities/nutrient-levels-in-adults-with-autism-spectrum-disorders.php


OHSU in Portland - Portland Autism Infant Research Study (PAIRS):
The goal of this study is to develop new technologies to detect autism earlier.  We are looking for families who have a 0 – 6 month-old baby (or are expecting) and an older child who: 1) is typically developing; OR  2) has an autism spectrum disorder; OR 3) has a developmental delay or learning disability. Familiies would visit the CSLU nursery periodically until their baby is 24 months old. During these visits, babies would wear movement sensors on their arms and legs, and parents would also wear movement sensors on their arms. Audio and video recordings would also be made. The goal is to use these technologies to find early signs of autism in the sounds and movements of infants who are later diagnosed with autism. Please contact the research team at 
(503) 748-1602 or PAIRS@ohsu.edu for more information. To see the flyer on this study, please click here.

 
Needs and Services for Adults with Autism Survey
Peter Sciabarra, a doctoral student at the University of San Diego, School of Leadership and Education Sciences is conducting research in support of his dissertation involving a comparative evaluation of autism support and resource organizations and how they serve the needs of high functioning adults on the autism spectrum. He is also the parent of a 20-year-old young adult with high-functioning autism. He is looking for participants willing to participate in a survey.Take Needs & Services for Adults Survey Now


OHSU in Portland - Brain Imaging Research Study

For children ages 7 to 15 with a diagnosis of high functioning autism. Compensation for children and parents participating. For more information, please call (503) 494-1897 or download this flyer


Texas Tech University, Marriage & Family Therapy Program, Burkhart Center for Autism -  Survey on Stress & Coping among Heterosexual Couples with Children with ASD
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The on-line survey takes 10-15 minutes to complete. Couples in which both partners complete the survey will have the option of entering themselves in a drawing for a $25 Visa gift card, with a 1 in 10 chance of winning. For more information, contact matt.brown@ttu.edu or 806-743-2820 x 233. 
Link for survey: https://atrial.qualtrics.com/SE/?SID=SV_1C6LR3d8Ri0eDA0

Sexuality and Citizenship on the Autism Spectrum
Hi, I am Jessica Penwell Barnett, a PhD student at the University of Windsor. I am recruiting participants for my dissertation study on sexuality in the lives of adults on the autism spectrum. http://www.uwindsor.ca/people/barnettj
This study will build knowledge about sexuality from the perspective of Autistic people. It will also contribute to discussions of sexual rights. Participants will receive a $25 gift card to Amazon. Participants must be 18 years or older and live in the United States.
If you decide to participate in this study, you will complete a brief survey and an online interview. You will be asked to refer your romantic partner, if you have one, for a follow-up interview. You will also be asked to refer your main support person (friend, parent, paid worker, etc.) for a follow-up interview. Follow-up interviews are intended to provide information about important relationships in your life and how people close to you think about autism and sexuality.
Please go to http://www.uwindsor.ca/people/barnettj for more information about the study’s aims and to get started!
Jessica Penwell Barnett barnettj@uwindsor.ca is conducting this study. I have received clearance from the University of Windsor Research Ethics Board.