Research and Surveys on Autism
Research & Surveys - Participants Needed:
ASO receives many requests for participation in surveys and other research being conducted on various aspects of Autism Spectrum Disorders. Although we can't review all of these, we do post them for individuals to decide if they would like to participate. Posting of these research announcements does not constitute any endorsement by ASO. If you have any questions about the research being conducted, please contact the specific researcher for more information.
Looking for People Caring for family members with Autism / Alzheimer's Dementia We are conducting a social research study to better understand the experiences of those who care for a family member /loved one with a form of pervasive developmental disorder (e.g. autism, Asperger syndrome, Rett syndrome, childhood disintegrative disorder, etc.) or with progressive forms of dementia. We are looking to gain a more complete understanding of daily routines, experiences, and other caregiving responsibilities. The information gathered will be used to develop support services that wil hopefully better assist caregivers. Partificipation is easy and involves keeping a video diary and one short in-home visit. To find out if you qualify to participate, please send an email with your name, phone number and best time to reach you to firstname.lastname@example.org
Survey on Successfully Toilet Training Children with Disabilities The purpose of this study is to discover how caregivers of children with special needs toilet train their children. This study is aimed at caregivers with the understanding that people who have actually had the experience are the best resource for gaining truly informative and useful information about that experience. This study is completely voluntary and the survey is anonymous. You do not have to complete the survey, although your participation would be greatly appreciated. If you have questions about the survey, please contact EricaElledge@Creighton.edu. Survey link: https://www.blueq-surveys.creighton.edu/se.ashx?s=46BEEE7F6C4758E5
Parents and Caregivers of children with autism, you are invited to participate in a valuable study. This study can help voice your concerns about how you feel your child is being educated. Please go to the link below and take this short survey. Your cooperation is greatly appreciated.
Survey Monkey survey link: https://www.surveymonkey.com/r/RQCFPFL
Through funding from the U.S. Department of Education we are developing PREP, an online program to help high school students with autism spectrum disorder prepare for the transition to postsecondary education. (Please see a brief informative video about the program at: https://www.youtube.com/watch?v=BCRK7-ZnRvs&feature=youtu.be). In this phase of testing, we will send out each unit for a parent and child to review. We will ask the family to provide us feedback on the material through our survey system. We are going to try to do this round of testing completely online with follow-up questions done by phone, if needed. For each unit that you review and provide feedback, the parent and child will each will receive a $25 amazon gift code. If you think that you might be interested, please look over the information below and then follow the link to the online eligibility survey. www.prepasd.com/study
Please keep in mind that you may not be selected to review all 12 units, and that testing will continue until June 2015. If we catch you at a bad time, you aren’t obligated to complete the review….just let us know and we will skip you for that round but keep your name on the list for future rounds.
Brain Development Study for Children with Autism
Researchers at OHSU are looking for families of children with Autism (Autism, Asperger’s, High-Functioning Autism, and PDD-NOS) between the ages of 7 and 15 to participate in a study to look at differences among children with and without Autism. This study involves up to four visits to OHSU where you will complete an interview and set of questionnaires. Your child will complete some thinking tasks as well as an MRI scan (Magnetic Resonance Imaging Scan) of his or her brain. Like x-rays, the MRI takes pictures, but does not use radiation. There are no medications or injections involved with this study. Your child will read a social story about the study and do a brief practice scan in a “mock scanner” before doing the real MRI. You and your child will be compensated for your participation in this study. The parent participant will receive a total of $110 and the child participant will receive a total of $80 and a brain picture upon completion of the study.
Your participation is completely voluntary but would greatly help us better understand how Autism and ADHD are alike and how they are different so that we can continue to improve our interventions for all children.
Please e-mail us for further information about this opportunity to participate in autism research. email@example.com
Are YOU an Adult with Aspergers Autism PDD-NOS?
Do you ever wish research on the autism spectrum reflected YOUR attitudes, experiences, and opinions? You are invited to participate in an online research study about the experiences and attitudes of individuals on the autism spectrum. Little is known about how adults on the autism spectrum think about themselves or their experiences. Little is also known about how individuals on the autism spectrum view the diagnosis.Your participation in this study may help advance understanding of the perceptions and experiences of adults on the autism spectrum.
To participate in this study, you need to:
- Be age 18 or older
- Have a diagnosis or identify with a diagnosis of Asperger’s Syndrome, Autism, or PDD-NOS
- Be able to complete an online survey
Participation in this study includes a chance to win a $100 Visa Gift Card.
To participate in this study, please use the following link:
University of Wisconsin- Madison IRB Approved Study ID: 2014-0075-CP002
The Oregon Research Institute is looking for parents of 3-7 year old's with challenging behaviorsto take part in a research study. For more information, please click on the link http://bit.ly/1mz21BH
Help a High School Student with a survey based research project on autism and parenting styles in the hopes of making a difference in the lives of families that have a child with an Autism Spectrum Disorder. https://www.surveymonkey.com/s/parenting_style_in_children_with_ASD
Women on Spectrum's Sexuality Study
A Doctoral Candidate is looking for women, and people with more fluid gender identities (for example, transgender, agender, genderqueer), between 18 and 30 years old, on the autism spectrum to complete a 20-minute online survey. The survey and more information about the study are available here: www.umbwomensstudy.com. Participation is on a volunteer basis and completely confidential. Participants have the option of receiving a summary of the study findings once it is finished. This study has been approved by UMass Boston's IRB (protocol #2014095).
Online study for students with HFA transitioning to college
Do you have a high functioning autism spectrum disorder?
Have you attended or are you currently attending a postsecondary setting (for example, a university, a community college)?
Would you like to make $100 in just a few hours?
With funding from Autism Speaks, 3C Institute is looking for individuals with high functioning autism spectrum disorders to review and tell us what you think about our program that is designed to help students cope with the personal, social, and academic challenges of college life.
- If eligible, you may be chosen to participate in the study where you will be asked to review the SCoRE-Propel (Student Curriculum on Resilience Education-Propel) curriculum during a four-week study.
- Each participant with a high functioning autism spectrum disorder may receive up to $100 in gift cards at the end of the study period.
We will also ask your permission to contact one of your parents to ask your parent, to review the program and give us feedback (if one of your parents decides to participate in the study, your parent will not have access to information that you provide as part of the study). In addition, you are not required to allow us to contact your parent to participate. You can participate whether or not you give us contact information, and if we contact your parent, whether or not your parent agrees. If your parent does agree, your parent will also receive a separate gift in appreciation.
If you are interested in possibly participating in this study, please click here www.scoreforcollege.org/scorepropel/participate to complete a brief eligibility screening form. We will then contact you to let you know if you qualify and to provide the next steps for participation.
If you have any questions about the research study, please contact Kate Melillo at 919-677-0102 ext. 579 or email her at SCoREPropel@3cisd.com
Are YOU an Adult With Aspergers Autism PDD-NOS? Do you ever wish research on the autism spectrum reflected YOUR attitudes, experiences, and opinions?
You are invited to participate in an online research study about the experiences and attitudes of individuals on the autism spectrum. Little is known about how adults on the autism spectrum think about themselves or their experiences. Little is also known about how individuals on the autism spectrum view the diagnosis. Your participation in this study may help advance understanding of the perceptions and experiences of adults on the autism spectrum.
To participate in this study, you need to:
* Be age 18 or older
* Have a diagnosis or identify with a diagnosis of Asperger’s Syndrome, Autism, or PDD-NOS
* Be able to complete an online survey
Participation in this study includes a chance to win a
$100 Visa Gift Card.
To participate in this study, please use the following link:
The Oregon Research Institute is looking for parents of children with challenging behaviors to participate in a research study called Success for Children and Families Project
- Survey from the Oregon Commission on Autism Spectrum Disorders (OCASD) Subcommittee: Services to Children and Families: The purpose of the survey is to hear directly from families the environmental challenges they experience in the family home. The subcommittee will be using the information gathered to help shape and guide projects that provide families with information on strategies for community living and safety. Here is the link for the survey -https://www.surveymonkey.com/s/AutismCommission
- Attention Parents of Children ages 0 - 26 who experience special physical, developmental, or behavioral health needs! We are passing along a very important survey on behalf of the Oregon Center for Children and Youth with Special Health Needs (OCCYSHN).This survey is not your average survey--it is your opportunity to give input to the State of Oregon on the status of our families and the health systems our children use. This needs assessment only occurs every five years; and this time, teens and young adults aged 12 - 26 can take their own survey! The survey will only be open until August 21, 2014. Answers are anonymous and will be summarized with responses from other parents (OHSU Institutional Review Board No. 00010807)
- PARENT SURVEY ENGLISH: https://www.surveymonkey.com/s/OR_Family_English
- PARENT SURVEY SPANISH: https://www.surveymonkey.com/s/OR_Familia_Espanol
- YOUTH SURVEY ENGLISH: https://www.surveymonkey.com/s/OR_Youth_English
- YOUTH SURVEY SPANISH: https://www.surveymonkey.com/s/OR_Juventud_Espanol
- Parent-delivered Massage Program Research Study for Children with Autism Ages 6 to 11 - Parents must be willing to:
• Participate in 20 home visit treatment sessions with trained staff during the first five months followed by 4 monthly sessions • Give the fifteen-minute massage daily • Not start new treatments for autism during the study
Children must: • Have a medical and/or educational diagnosis of autism • Be between ages 6 to 11 • Not take psychoactive medication or pharmaceutical chelation therapy • Have no additional chronic disability (e.g., cerebral palsy or uncontrolled
seizures) • Not receive more than 15 hours per week of intensive behavioral treatment for autism (e.g. ABA therapy)
Contact: firstname.lastname@example.org, 503.474.0218, www.qsti.org
- Do you have a child with Autism Spectrum Disorder (ASD)? Do you also have a niece, nephew or other extended family member with ASD? UW researchers are recruiting families with at least one child diagnosed with ASD and one or more extended family members diagnosed with ASD (age 3 and up) to participate in a study. Participants must be biologically related. The study involves a phone call to determine if the study is a good match for your family; completion of questionnaires and a phone interview; one 2-hour visit with UW staff which will include cognitive and language testing and a blood draw for DNA analysis. For more information, please call the research coordinator at 206-616-3410 or email: email@example.com
- Vulnerability of individuals with autism spectrum disorder to naïve involvement in criminal activity
Researchers at Flinders University invite adults aged 18 years or older with an autism spectrum disorder to participate in an online study. This research is being conducted by Rebecca Flower (Rebecca.Flower@flinders.edu.au) under the supervision of Associate Professor Robyn Young (Robyn.Young@flinders.edu.au) and Professor Neil Brewer (Neil.Brewer@flinders.edu.au).The aim of this project is to understand whether features that may be present in individuals diagnosed with autism spectrum disorder influence their understanding of social situations and appropriate behaviour. The project consists of two sessions. Each session is expected to take approximately 1 hour (you may take up to 4 hours to allow for breaks). The second session will occur weeks or possibly months later. This session will involve questions about demographic information (including age, gender, diagnosis, and any experiences you have had with the criminal justice system) and a set of statements about your preferences and skills. Following this, you will be asked about your interests, and then to watch some short scenarios and answer 1-2 questions after each.Participants who complete the study requirements will receive a $10 (AUD) Amazon voucher after each session.
To participate, please click the following link: bit.ly/1iLztCu
- ASD Children and Their Siblings: The SocialsibS project, funded by a Treatment grant from Autism Speaks, will investigate the effects of a 10-week social communication intervention implemented within the PSU Speech & Language clinic. We are currently recruiting families for participation in the study. Families will receive 10 weeks of intervention individualized to their child's specific social communication goals free of charge. Recruiting children with ASD ages 4-7 and siblings with typical development ages 5-10. For more information, go to: http://asdchildlab.research.pdx.edu/
- Autism Diagnosis Project (ADP)
Click here for survey.
This project is being conducted by researchers at the Portland State University Autism Training & Research Center and special education graduate students who are completing their master’s project requirements. The study will examine the experiences of parents of children with autism spectrum disorders in obtaining a diagnosis for their children from physicians. The information collected will be used to better inform doctors and parents, so that children with autism will be diagnosed at an earlier age and be able to receive educational services as soon as possible. In addition, study results will be shared with parents and other researchers and practitioners in the field, including specialists at the Oregon Health Sciences University Autism Clinic. The results will also guide the development of resource materials for families, pediatricians, and practitioners. Study results and resource materials will be posted on the Autism Training & Research Center website. At a later date the public will be able to review the study results and download any posted resource materials.
Information about your Online Survey Responses
Your participation in this study is voluntary. Your responses will be automatically and
anonymously be recorded in a Google spreadsheet. There are no names or identifying
information collected on the surveys. Researchers will only see the time and date of
completion and answers to each question and have no way of knowing who completed each survey. Your survey responses are confidential. Your identity or child’s identify (if you are a parent) will remain anonymous.
Interested in Completing a Survey? Complete the survey for parents!
Questions? Please contact Dr. Helen Young at 503-725-8009 or email her at firstname.lastname@example.org
If you have any issues or concerns about your participation in this study or your rights as a research subject, please contact the Portland State University, Human Subjects Research Review Committee, Office of Research and Strategic Partnerships, Market Center Bldg., 6th Floor, 1600 SW 4th Avenue, Portland, OR (503) 725-4288 or 1-877-480-4400, email@example.com.
The physical fitness of school-aged children with autism.
Children with and without autism between the ages of 9-18 years old and their parent(s)/caregiver(s) are invited to participate in a study aimed to understand the physical fitness of school-aged children with autism. For more information, please contact Megan macDonald, PhD (principal investigator) at firstname.lastname@example.org or 541-737-6928
Effects of Parent-Delivered Massage in Young Children with Autism in the Willamette Valley and Columbia Gorge areas
Western Oregon University's Teaching Research Institute has been awarded a grant by the federal Maternal and Child Health Bureau to conduct a three-year study on the beneficial effects of parent-delivered massage in young children with autism. Teaching Research Institute at Western Oregon University has been teaching parents a daily massage program that has been shown in early studies to be effective in helping children become more comfortable with touch. Children become calmer, are better able to learn, and exhibit better behavior overall.
Starting this fall, 50 children under age six will have the opportunity to participate in the study. In the fall of 2014, 35 children ages 6 through 11 will be enrolled in the study. Families enrolled in the study will receive free training, treatment, and assessments. Participants will be recruited from the Portland, Columbia Gorge, Salem, Albany/Corvallis, and Eugene areas, and accepted on a first-come, first-served basis. Those interested in learning more about the study can visit www.qsti.org or call 503.474.0218.
Improving Communication with Siblings:
The SocialsibS project, funded by a Treatment grant from Autism Speaks, will investigate the effects of a 10-week social communication intervention implemented within the PSU Speech & Language clinic. The intervention will use video modeling with the child with ASD and teach the sibling strategies to improve communication. These two methods of video modeling and sibling mediation, have been found to be effective in improving social communication for children with ASD. http://www.autismspeaks.org/science/grants/hybrid-social-communication-intervention-children-asd-sibling-mediation-and-video-mod)
Families are currently being recruited for participation in the study. Families will receive 10 weeks of intervention individualized to their child's specific social communication goals. Recruiting children with ASD ages 4-7 and siblings with typical development ages 5-10.
* 10 weeks of social communication intervention services,
* Free PSU parking during intervention services
* Two $20 Fred Meyer gift cards (one upon enrollment and one at discharge from the study)
Contact: Amy Donaldson
(503) 725-3224 • email@example.com
724 SW Harrison, Room 85
Portland, Oregon 97201
Walden University Adult Caregiver Survey:
Are you a caregiver of an individual with an Autism Spectrum Disorder who recently graduated (or aged out) of high school this past year? If so, please click on the link below and take a brief questionnaire. It should take you less than five minutes to complete. If you meet the criteria for participation, a behavior rating scale and a self-addressed stamped envelope for its return will be mailed to the address you provide, which should take you approximately 45 minutes to complete. This is a research study by a doctoral student intended to provide empirical evidence to lawmakers and school district personnel about the importance of implementing and funding community-based instruction for individuals on the spectrum.
The goal of this study is to develop new technologies to detect autism earlier. We are looking for families who have a 0 – 6 month-old baby (or are expecting) and an older child who: 1) is typically developing; OR 2) has an autism spectrum disorder; OR 3) has a developmental delay or learning disability. Familiies would visit the CSLU nursery periodically until their baby is 24 months old. During these visits, babies would wear movement sensors on their arms and legs, and parents would also wear movement sensors on their arms. Audio and video recordings would also be made. The goal is to use these technologies to find early signs of autism in the sounds and movements of infants who are later diagnosed with autism. Please contact the research team at (503) 748-1602 or PAIRS@ohsu.edu for more information. To see the flyer on this study, please click here.
Peter Sciabarra, a doctoral student at the University of San Diego, School of Leadership and Education Sciences is conducting research in support of his dissertation involving a comparative evaluation of autism support and resource organizations and how they serve the needs of high functioning adults on the autism spectrum. He is also the parent of a 20-year-old young adult with high-functioning autism. He is looking for participants willing to participate in a survey.Take Needs & Services for Adults Survey Now
Texas Tech University, Marriage & Family Therapy Program, Burkhart Center for Autism - Survey on Stress & Coping among Heterosexual Couples with Children with ASD.
The on-line survey takes 10-15 minutes to complete. Couples in which both partners complete the survey will have the option of entering themselves in a drawing for a $25 Visa gift card, with a 1 in 10 chance of winning. For more information, contact firstname.lastname@example.org or 806-743-2820 x 233.
Link for survey: https://atrial.qualtrics.com/SE/?SID=SV_1C6LR3d8Ri0eDA0.