Autism Society of Oregon Autism Society of Oregon on Facebook

Oregon Chapter

Autism Action Plan

Has someone told you that your child may have a developmental delay or disorder such as autism or Asperger Syndrome?  

Do you have concerns about your child's development?
Here are some steps to get you going in the right direction...

Validate your concerns:
If you have concerns about your child's motor, social/ emotional, cognitive or communication development, investigate them with the following tools:
www.firstsigns.org
www.asqoregon.com

Get an Evaluation: 
The sooner you get an evaluation, the sooner you can get services from schools, programs and specialists.
In Oregon, you can get an educational diagnosis through early intervention specialists that work through your county.  This diagnosis will be enough to qualify your child for educational and therapeutic resources provided for free through the state. 
If the educational diagnosis alone is not meeting your child's needs, pursue a medical diagnosis from an experienced psychologist or developmental pediatrician.
 
                                  
Get Organized:
Manage medical records, assessments, laboratory values and other important data in a binder and have it organized and ready to go for appointments.  A "Child's Life Care Notebook" is available from the Swindell's Center in Portland, Oregon.

Get Resources:
The Autism Society of Oregon provides many wonderful resources for families in Oregon.  These resources include support groups, social groups, conferences and the "Take a break on ASO" program.

The Northwest Autism Foundation is a wonderful group of caring folks who can provide local numbers and resources for just about every aspect of living with autism and getting the best opportunities for your child. Call 503-557-2111 and request a current Autism Resource Directory.


Get an IEP (Individualized Education Program):
The RISE Center helps parents with the IEP process - for free!  They run free seminars throughout Oregon, have a free Special Ed helpline, and - on request - provide volunteer Parent Partners to attend IEP meetings with the parents. The website is http://www.oregonrisecenter.org/

Other helpful links and info can be found at:
www.ode.state.or.us/pubs/forms/iep/
www.tacanow.com/iepcheck.htm

If your child is under the age of 5, an IFSP (Individual Family Support Plan) is available as well as Early Intervention preschool and specific therapies provided by the state.


The Complete IEP Guide by Attorney Lawrence M. Siegel.
This book clearly illustrates your rights, has examples of letters  to write and will define what is possible for your child to receive.


Obtain early theraputic intervention:
Organize a team of therapists, under the guidance of your primary care provider, pediatrician or an autism consultant. A good therapist will be able to identify your child’s strengths and weaknesses and provide detailed recommendations for your child.   Early intervention leads to success!
Types of professionals to consider:

Speech pathologist
Occupational therapist
Behavioral therapist

Find A doctor who is experienced in biomedical assessment and treatment of children with autism:
A doctor is an important step on the autism journey.  There are many safe and effective biomedical therapies that can be helpful for your child.  Examples include: Methyl B12 injections, nutritional therapy, homeopathy, dietary treatments and immune modulation.
Remarkable improvements have been seen in children who receive biomedical treatments.
Find a doctor who stays up-to-date with information and experience in treating children on the spectrum.

Address your child’s diet:
The foods your child eats directly effects the ability of your child’s brain and body to develop and function properly.  Remove additives, preservatives & dyes from all foods.  Go organic if you can and eat as many whole, fresh foods as possible.  Get some good recipes and experiment with vegetables!  Your child will only eat them if he sees you eating (and enjoying) them, so get creative and have fun!

Cookbooks:
Nourishing Traditions by:  Sally Fallon
The Petit Appetit Cookbook: Easy, Organic Recipes to Nurture Your Baby and Toddler by: Lisa Barnes
The Family Nutrition Book:  William Sears MD

Many parents have found a Gluten free/ Casein free (GF/CF) diet extremely effective in reducing autistic symptoms.
Nourishing Hope by Julie Matthews
www.gfcfdiet.com

The Kid-Friendly ADHD and Autism Cookbook: The Ultimate Guide to the Gluten-Free, Casein-Free Diet (Hardcover)
by Pamela Compart & Dana Laake 

Attend support group meetings:
Autism Society of Washington and Oregon hold meetings in several counties.
Autism Society of Oregon:  www.oregonautism.com
    Call:  1-888-AUTISM-1  or email at:  aso@teleport.com
Autism society of Washington
www.autismsocietyofwa.org
    Call: 1-888-279-4968

Autism medical support group: kathyh@arroautism.org
    Call: 503-284-0350


Get Ready to Read:
There are many books and websites to give you information about services, treatments, support and resources.

Websites:
Autism Research Institute
Talk About Curing Autism

http://www.socialthinking.com/

Biomedical Treatment:
Changing the Course of Autism- Bryan Jepson, M.D.
Healing the New Childhood Epidemics: Autism, ADHD, Asthma and Allergies- Kenneth Bock, M.D.
Children with Starving Brains – 2 nd Edition – Jacquelyn McCandless, M.D.


Find Balance:
Keep in mind that advocating for your child is quite like running a marathon.  You need to pace yourself and think both short term and long term about every decision you make.
Balance in your life will benefit both you and your child.  Remember to cherish your spouse and other children. Also, remember to take time for your self.  Keep seeking out the fun and love that comes with being a family.  Keep participating in activities that help control stress and lift you up.  Encourage your child every day and emphasize all of his or her unique and wonderful qualities.